yesimbeyonce:

honeymacca:

equestrian-strumpet:

this is the most important thing i will ever reblog

reblogging for the last one: the teacher from sandy hook who was gunned down after hiding her entire second grade class in a closet and telling the shooter that her class was in the gym. she made sure to tell each child that she loved them before she left them, knowing that those might be the last words they would ever hear.

This literally broke my heart, there are tears in my eyes

Over the past couple days I’ve been listening to a few songs that I feel like really relate to my experience.Throughout this experience I’ve had several lows. I’ve felt extremely weak physically and mentally.

I was walking on the treadmill feeling exhausted. It was frustrating and almost made me want to quit. I couldn’t do something that use to be so easy.

I have also found the effects of Prednisone very difficult at times. I can honestly say the medicines do have a very profound effect on the mental state. I have felt so on edge, snapping at people for the slightest things. I try to control it or realize how ridiculous I am being.

I think the worst is the lows. A couple of times I just find myself crying, feeling like a burden. It can be so easy to fall into a funk of what I’m missing, who I’m missing and feeling like a burden to my family.

I love music and there have been two songs that have helped me keep my experiences in perspective. Skyscraper by Demi Lovato and Just For Now by Imogen Heap.

Skyscraper captures just how I feel. While I may feel broken down at times I’m on the way to being my best me. I am not a victim and each day I’m given the chance to be so much better than the day before.

Just For Now while the lyrics aren’t applicable so much, the title has become my mantra. All of the uncertainty and this situation is “just for now.”

I intend to use this time for the best. I can spend time reading and researching. I can play music and write an pick up new hobbies. Most of all I still have goals I want to complete.

I want an apartment, a full time job, to run a 5k, get a puppy and graduate college. If I can complete these my September I’ll be thrilled. And it will be so awesome to look back to right now when all of it seemed so hard to obtain.

I love reading about other people’s experiences. They really have given me so much insight. One of the most invigorating part of my experience thus far is the compassion and goodness of people.I have been shown so much love and support from family, friends, and strangers. I definitely know that one of my duties is to spread that same support to others!

Thanks for reading and I look forward to speaking/reading more with many of you!

So getting use to my very round face. Found some wigs that compliment it! Feeling good

Love this song. It really resonated with me today.  

This is perfect!

I was mildly attractive before taking Prednisone in three weeks I have turned into real life lumpy space princess.

I just followed a bunch of people. I’m so happy to see all these blogs and posts about Sjogren’s and related diseases. They’ve helped me understand better what’s going on with me. I really appreciate everyone who’s told their story!

grinderbunny:

I just wanted to take the time to write a post about life. its amazing how some humans are so strong after dealing with so much in their life. I’ve been too embarrassed to tell people that I actually have an immune disorder & a pain disorder & ovaries that don’t work! I was diagnosed recently with sjogrens and fibromyalgia & it changed my whole life. I was petrified… I didn’t know what to do. It’s made me a stronger person & the only choice I’ve had is to be strong. I’ve made new friends through all of this.. But also Lost mates who didn’t want to stick around. The past year I’ve been hospitalised a few times, had surgery.. Numerous tests etc.. It’s been hard and I’ve had to hold myself together but I don’t think I’ll hide anymore or be embarrassed because my health doesn’t change who I am as a person. I love life & will try live every moment! Basically my body is attacking itself & that’s pretty scary! Also if I ever wanted kids I’d need to go through ivf. I need a new body eek! I just wanted to say that you should love ur life & be happy & forget the small things!! …u never know what the next person is going through. I have a silent illness so you can’t see it from the outside but on the inside there’s a lot going on! I’ve kept to myself the past 2 years because I felt like hiding away but I miss being me. I won’t let this rob me of my life… Sure it’ll knock me down but I’m sure I’m strong enough to always get back up again! Thank you to the people who have stuck by me through all of this. I’m thankful for each & every one of you. This year I will only move forward & I can’t wait to do all the things that I planned to do with my life! This was a very personal post but I just want people to understand x #sjogrens #fibromyalgia #pcos

I have PCOS and Sjogrens too! It’s really kind of scary! You have a really great attitude and I really appreciated reading your post!

It’s crazy because over the summer and the beginning of the school year I was on my way to the best me. Getting sick from what I thought was pneumonia really put a damper in my ability to exercise yet and still I didn’t gain a single pound and still tried to put in work! Now I find myself having gained 10lbs in a week. My face has gone to lumpy space princess and lord have mercy on my midsection. It’s been so long since I’ve broke a good sweat and given the limits of my lung capacity I’m unsure of what I can do. Hopefully I can find some workouts for sub-beginners and some good workouts during tv on Fitblrs. Very open to suggestions…

Occasionally I can really feel what’s going on in my body. Today it felt like my chest was on fire. In addition, the medicines, are changing me. It’s easier for me to feel depressed or angry over very silly things. I watched Silver Lining Playbook and was uncomfortable because my chest was so tight. (a side effect of Imuran.) 

It sucks to watch my friends run around Chicago doing shit I know I’d be down for if I were there. What I get most upset thinking about is this guy. I met him in December. We’ve been talking and I really adore him. He even came and saw me about 2 weeks ago. I can see myself falling for him. Which is huge as I’ve been single since 2010. It sucks having to wait.

I get upset and start to think why me and when the fuck did I become so fragile. But I just can’t be mad. I’m an otherwise healthy girl. I have the most supportive friends and family and access to medicine some couldn’t dream of. The last emotion I get to feel is anger and I am never never a victim.